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Maddox has had 6 root canals over the past several weeks. He is so tough!!
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November 15th--Labs checked
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November 16th-Chemo shot in the leg
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November 20th--Labs checked
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November 21st-Chemo, Bone Scan, and Pneumonia Treatment
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November 24th--Maddox is having some bad back pain and headaches.
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November 25th--Another headache for Maddox today. It hurts him pretty bad when he gets one. He is still suffering from a some sinus congestion....for about 2 weeks now.
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November 25th--Really bad headache before bed tonight. The worst one he has had in a long time.
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November 26th--Maddox woke up today and still had a headache and his congestion is worse. The dr. called in some antibiotics for him to clear his sinuses...hopefully this will eleviate his headaches as well. He has slept most of the day. I am sure the medicine will make him feel better.
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November 29th--Maddox is still yucky. We are going to the hospital to get some IV anitibiotics...this should do the trick.
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November 30th--Maddox was up several times throughout the night in pain with his head. He is still really congested, and just is tired. He has went to bed every night around 6p or 7p. We are going back to the hospital to get more IV anitbiotics today.
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November 30th--We are home from the hospital. We got to see our dr.--we think he's the best!! :) He got more IV medicine. Good news...his counts are OK and he hasn't ran a fever. Yeah!! Hopefully this dose of medicine will work its magic overnight. :) I went ahead and gave him his chemo shot tonight. That is never any fun....
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December 6th--Labs checked
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December 7th--Chemo shot in leg
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December 8th--Maddox has 2 more teeth that are causing him pain. He won't eat anything unless it is soft. Yogurt, ice cream, peanut butter and jelly sandwiches. YIKES!!
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December 11th--Maddox had to come home from school with his stomach hurting. There is a nasty stomach virus going around hopefully he is OK... He is running a low grade fever. 99.9. Will wait and see how he does tonight.
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December 12th--Maddox is doing much better today. He woke up and ate some toast. Yeah!
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December 13th--Labs checked
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December 14th--Chemo, and pneumonia treatment at hospital.
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December 21st--Chemo shot in leg
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Sorry about the lapse in updates....Mom is trying to work part-time and taking college courses. I seem like I have no free time to do much of anything. Please forgive me for not keeping all of you informed like I should. We are so thankful for all the prayers!! Maddox is still doing normal treatment. Takes 14 days of chemo pills at home (working in 21 day pulses). He gets a chemo shot in the leg every week. 3 out of 4 weeks in the month he gets his labs checked to monitor his blood counts. Every 21 days he gets a larger dose of chemo through his meda port. Every 21 days he gets a inhaled treatment to help prevent pneumonia. He is continuing to go to school when he can and when he can't his homebound teacher comes to the house. He took a reprieve from painting, but has started working on a few things the past week. His last overnight hospital stay was February 2-5th when he got the Flu. He was pretty sick for several days, we are glad that is over with.
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March 7th--Labs checked
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March 8th--6:30am Spinal Tap. They check the spinal fluid for cancer cells and inject 2 different chemos into the spine...he is put asleep for this procedure. He got his other chemo medications through his medaport in his chest. He also got his pantamidine....(which is his pneumonia treatment). When we got home he was in pain with his back. He took several doses of tylenol and morphine
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March 9th--His back is still hurting...he stayed home from school. He had to continue with pain medication today as well.
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March 10th--Maddox is feeling better, but his teeth are killing him. I think we are going to have to head back to the dentist for some more work.
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March 13th--Maddox has a dental appt at 10a to hopefully fix whatever is causing him pain. He hasn't been able to eat solid foods for days now. Maddox had some sealants put on his bottom teeth and was fitted for a bite guard to help him from grinding his teeth so bad. It will take about 3 weeks for him to get this...but hopefully it will help.
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March 15th--Chemo Shot in leg
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March 21st--Labs checked...counts were good!!
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March 22nd--Chemo Shot in leg
- March 26th--Maddox has a bit of a cough...but seems to be feeling OK
- March 27th--Maddox's cough has gotten worse....he doesn't feel well....and is running a low grade fever around 99.7...he stayed home from school today to rest
- March 28th--Maddox is doing a lot worse!! He cannot seem to quit coughing!! Labs to check counts today.
- March 28th--He started running a temp around 101.1 tonight...he is coughing really bad. He has an appointment tomorrow for chemo, not sure if he will get.
- March 29th--Took to the hospital. Dr. Wagner had chest x-rays done which determined Maddox has pneumonia in left lung. He gave IV antibiotics. They let him come home because his counts were OK. (thankfully). He is taking Zithromax at home for the next 5 days.
- March 29th--Maddox is having a rough night....coughing really bad. Fever is up to 104.3. YIKES! Hopefully he will feel better soon.
- April 4th--Pneumonia Treatment
- April 5th--Chemo shot in leg
- April 11th--Labs done to check blood counts
- April 12th--Chemo shot in leg
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May 2nd--Maddox is sick --very tired, running fevers. Took to the clinic they gave him IV antibiotic
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May 4th--Maddox is still no better went back to the clinic they started him on some anitibiotics at home. He is sleeping 16-17 hours a day. No energy at all.
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May 10th--He is due for his chemo today....however his labs came back and his counts are still low. They gave only one chemo and held the other
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May 10th--Maddox fell out of a tree today....oops...crazy monkey! He is complaining of his ankle hurting pretty bad. Had to give him morphine for the pain.
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May 11th--Took Maddox to the doctor about his foot ....he said he isn't sure, but he thinks it is sprained. Suggested we wait until Monday and if it is still hurting go get an x-ray.
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May 14th--His foot is still hurting so we are going for an x-ray today. We'll keep you posted.....
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FOOT UPDATE!! May 14th--Maddox's x-ray came back and there is a fracture going to orthopaedic in the a.m.
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May 15th--They put a cast on Maddox's foot today.....he also had his labs checked to make sure they came up from last week. On another note....he lost a filling in one of his teeth this week and his teeth are starting to hurt again. I think it's time to go back to the dentist. ugh!
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May 17th -- Chemo shot in leg
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May 23rd - Labs checked
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May 24th - Chemo shot in leg
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May 30th - Labs Checked
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May 31st -- Last Day of school....he has to miss to get chemo and pneumonia treatment at the hospital
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June 7th - Chemo shot in leg
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June 7th--Maddox went to the pool for the first time in 2 1/2 years today...He got his cast off of his foot!!! Maddox went to the pool for the first time in 2 1/2 years today...he has not been able to go because of a comprimised immune system...he had a great time, but got sunburn pretty badly
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June 9th--Maddox's sunburn is much better....he is a little brown biscuit now. Still limping on his foot, but that said that was normal.
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June 10th--Maddox has had some type of reaction he is blistered on his back and foot. Took him to the ER today. They gave him medication and sent us home. He was on the floor rolling in pain when we got home and had to take him back to the ER. They admitted him.
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June 11th--They are concerned about Maddox's foot because it appears to have an infection. He is getting 2 different IV antibiotics. He is still in misery from the reaction on his back. Weird?
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June 13th--Late afternoon they discharged us!! Yeah!! So happy to be home. The good news is....Tomorrow was suppose to be Maddox's LAST CHEMO they are not going to give to him, because of the infection in his foot. This makes today a CELEBRATION DAY!!
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June 21st--Maddox's port removal surgery. He is so excited to have his port removed from his chest!! He has not been able to play contact sports because of the port for 2 1/2 years....coming this winter we will sign him up for Basketball!! How amazing. He is a bit sore from the surgery, but doing well.
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June 22nd -- Still sore, but happy to be completed.
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June 28th-- Follow up appt. at the clinic. All is well with Maddox. He received his pneumonia treatment which will continue for at least 6 months allowing his immune system to rebound. He had labs tested and all is well.
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August 9th--Maddox Birthday (his party will be on 7/28 with his celebration party).
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September 14th--Maddox came home from school with a terrible headache today...he slept until about 8:00p when he woke up he was running a very high temp. 104.1. He could not walk because of extreme extreme pain in his back.
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September 15th--9:00 a.m Maddox had a terrible night. He slept very deeply..only to wake up about every 30 minutes to throw up. He threw up about 15 times throughout the night. He still has a high fever 103.2. Cannot stay awake, and cannot walk. We are taking him to the ER at Children's Hospital
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September 16th -- Doctors are unsure what is going on with Maddox his blood pressure has been low, fever high, etc. They did x-rays on his back to eliminate any fractures. That was all good news!! His white count and inflammation markers are both very elevated
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September 17th--They are going to do a MRI on his back to look for tumors...and other things that I have no clue how to spell. Had to move his IV today...he hates that!! Ronnie McDowell called today...Maddox was thrilled to hear from him...thank you Ronnie!!
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September 18th--They are going to do a spinal tap to look for White Cells in his spine....an indication of infection
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September 19th--Waiting for results...waiting...waiting...waiting....
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September 24th--Maddox is still very tired...better...but tired....has slept a lot today. We are home now.
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October 13-20 -- Micky and Tenille in Peru for a missions trip
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October 21st--The trip was amazing. 50 people were saved. 500 received medical care. And one old man who had no hearing...was healed. Praise the Lord.
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October 23rd--Maddox appt. Pneumonia treatment.
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October 24th--Maddox is sick. His back is in a lot of pain again. He has a temperature and has no energy. They admitted him for testing.
